Life with a serious illness is not all dreary and glum. The condition and its symptoms can certainly take over. But daily life continues. And patients are more than their disease. Like everyone, they need to eat, walk, talk with friends and family, and enjoy pleasant activities. Palliative care is an extra layer of support. Its…
Posts Categorized: Coordinating care
Personal emergency response systems
A personal emergency response system (PERS) can provide peace of mind if the person you care for lives alone. There are many factors to consider when shopping for a device. The need for a personal call button. Is your loved one at risk of a fall or heart attack? If so, you’ll want 24/7 emergency…
What is an occupational therapist?
Eating, dressing, getting in and out of a chair. In the course of daily life, we use many skills to accomplish even “simple” tasks. Walking or using a fork is surprisingly complex. Nerve signals and muscles have to coordinate in a very specific order. A healthy body is a marvel! We take these skills for…
Researching treatments online
For those facing a serious—or even incurable—condition, the Internet can seem to be the last refuge of hope. But how can you distinguish a trustworthy website from that of a huckster? “Follow the money” is an important key for deciding if a website is truly unbiased. Start by asking yourself who, what, and why. Who:…
Take a break: Options for respite
Go to bed when you’re ready, sleep without interruption, and do what you want all day. Ahhh… If you’re providing full-time care for your loved one, you may long for a night to call your own. Better yet, a few days and nights of R&R. An extended respite break isn’t indulgent, it’s smart. Providing care…
If the unexpected happens
As a family caregiver, you have probably thought a lot about your loved one’s safety. Perhaps you have even gotten him or her a wearable call button for medical emergencies. But what if something happens to you? For instance, a car accident on the freeway? Or a trip-and-fall incident in a parking lot? How will…
Making medical decisions in a crisis
If you are named as health care decision maker for your loved one, you may be called upon to make very important decisions on very short notice. At a time like this, it’s easy, and very human, to get caught up in fear. Fear does not make for the best decisions. If you can, call…
When the attorney shuts you out
Many family caregivers are surprised to be told to stay in the waiting room when they bring a loved one to an attorney to create a will or trust. This can feel doubly surprising if you are the one paying for the visit! Much as you wish to help your relative, the attorney is actually…
Choosing a hospital? Look to the stars
How well does your local hospital perform in terms of patient care and safety? Now it’s easy to find out. One to Five Stars. Medicare gathers hospital data regularly. It posts the information on its Hospital Compare website. To make comparisons simple, Medicare created a star rating system. Hospital Compare combines information about as many as…
Technology for coordinating care
Do you at times feel like the conductor of an unruly orchestra? That’s not uncommon when caring for a loved one. You are coordinating multiple doctors. Tracking multiple prescriptions. Communicating with multiple family members. Scheduling paid help. It’s a lot to orchestrate! You are serving as a care coordinator. Here are some online tools that…